Wednesday, January 9, 2013
Our Worst Nightmare 1.9.13
I went in for my appointment after 9 days without being seen at the doctor. My last appointment was on a Monday (12.31.12) and I was coming in on a Wednesday (1.9.13). Coming from being seen somewhere between 2 and 4 times a week, this was my longest time between appointments that I had since I was diagnosed. It was a very confusing appointment as the Baby A, Austin who had always had the lower fluid now had 9.8 and Baby B, Ari who always had tons of fluid or higher fluid was 2.7 with no visible bladder. We were officially in stage 2 of TTTS which made surgery an option. I did not have good feelings about surgery as it was not the end all be all. It had helped some people with TTTS but a lot of people also had lost one baby if not two. We got on an airplane to San Francisco within 2 hours after my appointment to get emergency laser ablation surgery to try to help the twins. We checked into the hospital when we arrived and spent the night and appointments to review the twins status started at 7am with an echo then ultrasound and then meetings with the surgeons.
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